In this section, you will find resources that are most helpful for living with dying. The section on comprehensive materials helps people living with life-threatening illness, caregivers and family members learn about things of value to help ease the pain and transition through life’s end. In the section titled: Key Articles you will find links to articles that are topic specific and some of the best that literature has to offer. Links are provided to other sites known for the quality of educational materials that they provide for caregivers, patients, and family members.
Founded in 1997, the American Pain Foundation is an independent nonprofit 501(c)3 organization serving people with pain through information, advocacy, and support. Their mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain …
Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding. Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by …
Resources associated with the PBS programs. Visit And Thou Shalt Honor
If English is not a patient’s native tongue, one of the following 18 translations of the 0 to 10 numeric pain rating scale may be useful. Pain measurement tools can be accessed in multiple languages here at this site. Included here is a downloadable assessment form that doctors often use to help create a more …
Are You in Pain? (18 Multi-language Pain Assessment Scales) Read More »
[Medicare Benefits For Hospice] 2003 Publication # CMS 02154-S Translated version of English Medicare Benefits booklet. Centro de Servicios de Medicare y Medicaid — 7500 Security Boulevard, Baltimore, MD 21244-1850 Obtain from: Department of Health and Human Services 1-800-633-4227. (Can order a limited amount free of charge.)
There is a great divide separating the kind of care Americans say they want at the end of life and what our culture currently provides. Surveys show that we want to die at home, free of pain, surrounded by the people we love. But the vast majority of us die in the hospital, alone, and …
This important study and related reports released by the California Healthcare Foundation in March 16, 2007 reports that: In California, the most populous and diverse state in the country, significant racial and ethnic differences exist at the end of life. These reports are the first in a new series of CHCF-supported projects focusing on end-of-life …
Californians’ End-of-Life Care Differs by Race and Ethnicity Read More »
CancerCare is a national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance. visit Cancer Care
The National Cancer Institute (NCI) is a component of the National Institutes of Health (NIH), one of eight agencies that compose the Public Health Service (PHS) in the Department of Health and Human Services (DHHS). The NCI, established under the National Cancer Act of 1937, is the Federal Government’s principal agency for cancer research and …
Care of the Patient with Severe Chronic Illness-An Online Report on the Medicare Program is a key critical report completed in 2006 by the Dartmouth Atlas Project. It reports that: “Almost one-third of Medicare spending for chronically ill is unnecessary… A fundamental problem, and one that contributes to both overspending and worse outcomes, is that …