Respecting Choices is a model training program for facilitators who become resident experts in Advance Care Planning at health facilities and has a strong focus on organizational policy. The goal of the program is to build respect for choices into each organization's policies. A variety of posters, workbooks and planning guides are available in English and Spanish for work with consumers. The program was developed by the Gunderson Lutheran Medical Foundation (LaCrosse,Wis) in the early 1990s. It ... Read More
A national leader in development of tools and resources people living with chronic and/or terminal illnesses, nearing the ending of life or experiencing grief.
Visit Suncoast Hospice Resource Center
Formed in 1994 as Supportive Care of the Dying by six visionary Catholic health care organizations, Supportive Care Coalition: Pursuing Excellence in Palliative Care, has grown to 23 member organizations with health care facilities nationwide. In 2006, the name was changed to better reflect Coalition palliative care activities that address the continuum of living with life-limiting illness from time of diagnosis to end of life.
The coalition is dedicated to promoting cultural change that embraces ... Read More
This advance care planning workbook was designed by and for people with developmental disabilities to enable them to do their own advance care planning. A DVD video is also available and may be previewed online. This project was created by the California Coalition for Compassionate Care, the Board Resource Center and Mark Starford who has extensive experience and expertise in adapting complex information for persons with developmental disabilities. This is also a great resource to use when working ... Read More
When a person is first diagnosed with a serious illness, feelings of shock and stress may make it difficult to think of everything to ask the doctor. Often, it helps to make a list of questions. To help remember what the physician says, you may want to take notes or bring a family member or friend with you to your appointment.
Visit What to Ask Your Doctor
“With Eyes Open” is a four part public television series discussing caregiving, grief, difficult decisions and what may lie beyond death.
Visit With Eyes Open