Journey Project

  "Quality of life is the gold standard in palliative care. Francis Mueller, MD, Calistoga, California. Through the Journey Project, the Community Network builds upon nearly two decades of work advocating for quality, affordable neighborhood-based long-term care. Educational programming, strategic planning services, and publications offered draw upon a variety of perspectives representing the personal and professional experiences of those involved. The basic premise of Journey Project ... Read More

Last Acts

Last Acts was a national coalition of organizations engaged in an unprecedented education campaign to improve care for people who are dying and their families from late 1990s through 2004. Last Acts served as a clearinghouse for sharing information and ideas at the national, state and local levels. Last Acts provided a forum for discussion, collaboration and broad dissemination of new information. Much of this info is still available via this site and related links. Visit Last Acts ... Read More

Leading Age formerly American Association of Homes and Care for the Aging

The American Association of Homes and Services for the Aging (AAHSA) is committed to advancing the vision of healthy, affordable, ethical aging services for America. Find out more about our issues and contact congress at their website. It should be noted that the AAHSA is now called LeadingAge. See website for complete info.

Visit Leading Age formerly American Association of Homes and Care for the Aging

National Alliance for Caregivers

The National Alliance for Caregiving was created to conduct research, do policy analysis, develop national programs and increase public awareness of family caregiving issues. The Alliance’s mission is to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients. Established in 1996, NCA is a non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, ... Read More

National Family Caregivers Association (NFCA)

The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers. Publishes dementia caregiver tip sheets among other things. Visit National Family Caregivers Association (NFCA) ... Read More

National Institute on Minority Health and Health Disparities

The mission of the National Institute on Minority Health and Health Disparities (NIMHD) is to promote minority health and to lead, coordinate, support, and assess the National Institutes on Health effort to reduce and ultimately eliminate health disparities. In this effort NIMHD will conduct and support basic, clinical, social, and behavioral research, promote research infrastructure and training, foster emerging programs, disseminate information, and reach out to minority and other health disparity ... Read More

Partnership for the Public’s Health

PPH is both a place-based and people-based strategy. PPH supports strong, dynamic partnerships that bring residents, community groups and health departments together to improve community health. Resources are invested directly in communities through both community organizations and local health departments. Community residents understand what is needed to improve health and well-being because health happens at the community level, where people live. The engagement and investment of community residents ... Read More

Promises to Keep: Changing the Way we Provider Care at the End of Life

Promises to Keep: Changing the Way We Provide Care at the End of Life published by the National Coalition on Health Care and The Institute for Healthcare Improvement in October, 2000. This report presents the stories of institutions and organizations that made a commitment to change and innovation to improve care at the end of life. The profiles presented in this report reflect some of the most promising pioneering efforts underway in the field of palliative care. RAND’s Center to Improve Care ... Read More

Publications (Foundation of the State Bar of California)

Seniors & the Law: A Guide for Maturing Californians - Last updated in 2009. Avaialbe free in English or Spanish. Seniors & the Law offers an overview of important issues facing senior citizens, including finances and debt, social security and insurance, housing and caregiving, employment, health care, elder abuse/elder fraud, grandparents' rights, divorce and remarriage, and estate planning and legal services. This guide provides valuable information for seniors, their adult children, and their ... Read More

Reluctant Realism – Latino Perspective on End of Life Issues

Reluctant Realism by Margaret R. McLean and Margaret A. Graham published in Issues in Ethics, Winter, 2003 Volume 14, Number 1, Markkula Center for Applied Ethics, Santa Clara University pp. 7-9. To assist in the goal of improving the Latino health care experience in the San Jose community, 66 adults agreed to participate in a series of three focus group sessions that explored their attitudes and concerns regarding end-of-life care. This article presents their views of death and dying, their ... Read More