The California Hospice and Palliative Care Association advocates for those facing life-threatening illnesses. They provide technical resources to their members, monitor legislative and regulatory activities, and work closely with other organizations that share an interest in end of life care. They serve both California and Nevada. They partner with the California Hospice Foundation, to offer public and professional educational programs and materials to enhance understanding and availability of ... Read More
This important study and related reports released by the California Healthcare Foundation in March 16, 2007 reports that: In California, the most populous and diverse state in the country, significant racial and ethnic differences exist at the end of life. These reports are the first in a new series of CHCF-supported projects focusing on end-of-life issues - found significant variations in the expectations, experiences, and decisions of patients and their families in the months preceding death. “As ... Read More
The Center to Advance Palliative Care (CAPC) is part of the nonprofit Icahn School of Medicine At Mount Sinai Hospital in New York City on the front lines of the COVID tsunami that swamped that region of the country. The CAPC COVID Toolkit makes publicly available amazing resources created by CAPC over the decades as the preeminent leader for palliative care development. The Toolkit includes sections on: Communication Scripts and Conversation Videos; Symptom Management Protocols; Palliative ... Read More
Care of the Patient with Severe Chronic Illness-An Online Report on the Medicare Program is a key critical report completed in 2006 by the Dartmouth Atlas Project. It reports that: “Almost one-third of Medicare spending for chronically ill is unnecessary… A fundamental problem, and one that contributes to both overspending and worse outcomes, is that most acute care hospitals have become first-line providers of services to chronically ill elderly people, whose care would be better managed, safer ... Read More
Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation. Caring Connections Provides free resources, information and motivation for actively learning about end-of-life resources. Promotes awareness of and engagement in efforts to increase access to quality end-of-life care. Helps people connect with the resources ... Read More
Caring Conversations was developed by the Center for Practical Bioethics as a consumer education initiative to help individuals and their families share meaningful conversation while making practical preparations for end-of-life decisions. It is designed to guide you, your family and friends through the process of advance care planning. Caring Conversations is endorsed by the National Hospice and Palliative Care Association and is a recommended resource by AARP and Bill Moyers' outreach materials ... Read More
A Type III Interdisciplinary Research Center based at the University of South Florida Colleges of Medicine, Nursing and the College of Arts and Sciences, focusing on Quality of Life Research primarily at the End of Life.