Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding.
Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. ABCD works with the public, clinicians, policymakers, and ... Read More
Report of the Institute of Medicine (IOM) study study that which examined issues related to dying, decisionmaking, and appropriate care and selectively focus on several narrower topics. The group concluded that although much is being done to improve the care of critically ill and dying patients, many questions remain to be persuasively answered—or, for that matter, asked—about what constitutes appropriate care for different kinds of patients and how choices about care for dying patients can best ... Read More
If English is not a patient's native tongue, one of the following 18 translations of the 0 to 10 numeric pain rating scale may be useful. Pain measurement tools can be accessed in multiple languages here at this site. Included here is a downloadable assessment form that doctors often use to help create a more complete picture of your pain, including questions regarding the effectiveness of pain medications you've taken, side effects of these medications, and the effect your pain has had on your mood, ... Read More
California HealthCare Foundation’s online resource for independent research, analysis, and news on issues affecting health care delivery and financing with including in depth looks at Chronic Disease Care, Long Term Care and End of Life Care.
Attitudes Toward End-of-Life Care in California
Lake Research Partners, November 2006
While it’s true that Americans are living longer, there is a flip side. The aging population is grappling with new challenges, including an increasing number of ... Read More
[Medicare Benefits For Hospice]
2003 Publication # CMS 02154-S Translated version of English Medicare Benefits booklet. Centro de Servicios de Medicare y Medicaid — 7500 Security Boulevard, Baltimore, MD 21244-1850
Obtain from: Department of Health and Human Services 1-800-633-4227. (Can order a limited amount free of charge.)
CalMatters has done outstanding work related to the Breakdown of Mental Health in California. In May 2019 they hosted/recorded a video cast Mental Health Panel titled Hope on the Horizon, Reimagining Mental Health in California that is timeless and well worth watching. This nonpartisan, nonprofit journalism venture based in Sacramento is committed to explaining how California’s state Capitol works and why it matters spanning a full range of issues impacting daily life. CalMatters team of experienced ... Read More
California’s Medi-Cal Pediatric Palliative Care Benefit (Partners for Children). The Partners for Children demonstration project, a result of CHPCC’s public policy work, helps California families to address the challenges that accompany life-threatening childhood illness, without asking them to sacrifice hope for their child’s survival.
Currently there are ten California pilot counties, including Fresno, Los Angeles, Marin Monterey, Orange, San Diego, San Francisco, Santa Clara, Santa Cruz, ... Read More
Committee Jurisdiction: Primary jurisdiction includes area agencies on aging, California Department of Aging, long-term supports and services, Older Americans Act, Older Californians Act, senior citizen advocacy activities, the California Senior Legislature, services for seniors in residential and day settings and the California Commission on Aging.
The committee phone number is (916) 319-3990.
Visit Ca State Assembly Committee on Aging and Long Term Care ... Read More
The California Association of Public Authorities, or CAPA, was created to provide proactive leadership to improve the In-Home Supportive Services (IHSS) program; promote the general interests of the active members; promote higher professional standards, and through the exchange of information and ideas, stimulate a collegial and cooperative spirit among the membership.
Visit California Association of Public Authorities for In-Home Supportive Services ... Read More