The Robert Wood Johnson Foundation Last Acts Program spearheaded the national movement in the late 1990s on into 2004. Incredible research and publishing was completed during that period and available through this site along with more current publications.
For more than 20 years, the Dartmouth Atlas Project has documented glaring variations in how medical resources are distributed and used in the United States. The project uses Medicare data to provide information and analysis about national, regional, and local markets, as well as hospitals and their affiliated physicians. This research has helped policymakers, the media, health care analysts and others improve their understanding of our health care system and forms the foundation for many of the ... Read More
Hospice Foundation of America is a not-for-profit organization that provides leadership in the development and application of hospice and its philosophy of care. Through programs of professional development, research, public education and information, Hospice Foundation of America assists those who cope either personally or professionally with terminal illness, death, and the process of grief. Visit Hospice Foundation of America ... Read More
This site sponsored by the American Lung Association and ALTANA Pharma provides help to sufferers, their families and caregivers. You'll find profiles of COPD patients and caregivers, practical advice and the latest information on the disease and its diagnosis. Available through 12/31/05. Site notes that more than 10 million Americans suffer from chronic obstructive pulmonary diesease (COPD). It's the fourth-leading cause of death in the U.S. and costs $37 Billion in medical bills per year according ... Read More
Last Acts was a national coalition of organizations engaged in an unprecedented education campaign to improve care for people who are dying and their families from late 1990s through 2004. Last Acts served as a clearinghouse for sharing information and ideas at the national, state and local levels. Last Acts provided a forum for discussion, collaboration and broad dissemination of new information. Much of this info is still available via this site and related links. Visit Last Acts ... Read More
The Center for Practical Bioethics, formerly known as the Midwest Bioethics Center, has a 20 year history of raising and responding to ethical issues in health and healthcare and works specifically in the following areas. Researchers looking for Midwest Bioethics Center publications should contact the Center for Practical Bioethics. Clinical and Organizational Ethics: solving moral problems by educating and empowering healthcare professionals and their institutions, advocating for patients’ ... Read More
The National Alliance for Caregiving was created to conduct research, do policy analysis, develop national programs and increase public awareness of family caregiving issues. The Alliance’s mission is to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients. Established in 1996, NCA is a non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, ... Read More
The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers. Publishes dementia caregiver tip sheets among other things. Visit National Family Caregivers Association (NFCA) ... Read More