As professional planners working in the elder care field since the mid-1980’s, we are aware of the shining stars of elder care and end of life care. Annotated links will take you to model project sites and provide you with research needed to substantiate a shift toward community-based long-term care and palliative care. Current Issues are included to help keep ourselves and others abreast of matters affecting our work and communities of concern. The Journey Project Resource Center houses in-depth research collection far expanded beyond the representative sampling provided herein.
National Family Caregivers Association is now doing business as Caregiver Action Network and supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA/CAN reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common […]
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The mission of the National Institute on Minority Health and Health Disparities (NIMHD) is to promote minority health and to lead, coordinate, support, and assess the National Institutes on Health effort to reduce and ultimately eliminate health disparities. In this effort NIMHD will conduct and support basic, clinical, social, and behavioral research, promote research infrastructure
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Visit Palliative Care Australia Standards
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Physician Orders for Life-Sustaining Treatment (POLST) is a document to help ensure that a patient’s wishes are known and honored toward the end of life. It uses a standardized medical order used to indicate which types of life-sustaining treatment a seriously ill patient wants or doesn’t want if his or her condition worsens. POLST assists
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Promises to Keep: Changing the Way We Provide Care at the End of Life published by the National Coalition on Health Care and The Institute for Healthcare Improvement in October, 2000. This report presents the stories of institutions and organizations that made a commitment to change and innovation to improve care at the end of
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Dedicated to long-term changes to improve health care for dying people and their families. Through the work of innovative demonstration projects and peer workgroups they strive to address particular challenges to existing models of hospice and palliative care. Visit Promoting Excellence in End-of-Life Care
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Reluctant Realism by Margaret R. McLean and Margaret A. Graham published in Issues in Ethics, Winter, 2003 Volume 14, Number 1, Markkula Center for Applied Ethics, Santa Clara University pp. 7-9. To assist in the goal of improving the Latino health care experience in the San Jose community, 66 adults agreed to participate in a
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Respecting Choices is a model training program for facilitators who become resident experts in Advance Care Planning at health facilities and has a strong focus on organizational policy. The goal of the program is to build respect for choices into each organization’s policies. A variety of posters, workbooks and planning guides are available in English
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Judith Citko and Lake Research Partners, November 2006 Despite its inevitability, death is a difficult topic for many patients, families, and physicians to discuss openly. However, with more Americans getting older and the increase in prime-time media coverage of highly charged end-of-life issues, there is a growing awareness and discussion of the complex considerations involved.
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In August 2007, the Sonoma County Board of Supervisors authorized the Department of Health Services to convene a health action council (now called “Health Action”) to work on improving health and health care for all Sonoma County residents. Health Action’s over-arching mission is community health improvement. Building on the interest and commitment of many community
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