The Robert Wood Johnson Foundation Last Acts Program spearheaded the national movement in the late 1990s on into 2004. Incredible research and publishing was completed during that period and available through this site along with more current publications.
Visit Last Acts Print Materials on Palliative Care for Professionals
Living Old is one hour Frontline program filmed November 21, 2006 presenting a powerful and intimate journey into the uncharted territory of Americans living longer than ever — and what it means for them, their loved ones and our society. On this site you can view the whole program or individual chapters including:
The Stories-Living lives that neither the elderly nor their families ever prepared for.
Interviews-Doctors, one family’s story, and a conversation with a remarkable 94 year-old.
The ... Read More
A forum for research and discussion in all areas of applied ethics The Markkula Center for Applied Ethics at Santa Clara University is one of the preeminent centers for research and dialogue on ethical issues in critical areas of American life. The center works with faculty, staff, students, community leaders, and the public to address ethical issues more effectively in teaching, research, and action. The center’s focus areas are business, health care and biotechnology, character education, government, ... Read More
This site from the Washington Home Center for Palliative Care Studies offers support and resources to hospitals, nursing homes, health systems, hospices, and other organizations that serve individuals nearing the end of life and their families.
The Center for Practical Bioethics, formerly known as the Midwest Bioethics Center, has a 20 year history of raising and responding to ethical issues in health and healthcare and works specifically in the following areas. Researchers looking for Midwest Bioethics Center publications should contact the Center for Practical Bioethics.
Clinical and Organizational Ethics: solving moral problems by educating and empowering healthcare professionals and their institutions, advocating for patients’ ... Read More
Provides access to numerous articles that contain much good information in terms of effectively communicating with people in various stages of dementia to help them complete life rather than withdraw and close down.
Visit Naomi Feil, M.S.W Validation Therapy Website
The National Alliance for Caregiving was created to conduct research, do policy analysis, develop national programs and increase public awareness of family caregiving issues. The Alliance’s mission is to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients. Established in 1996, NCA is a non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, ... Read More
Clinical Practice Guidelines for Quality Palliative Care, a professional consensus from five major US palliative care organizations on clinical guidelines for quality palliative care services adopted in May, 2004 and updated in 2009. These guidelines have served as a foundation for the National Quality Forum Preferred Practices and have become a hallmark within the field guiding policy makers, providers, practitioners and consumers in understanding the principles of quality palliative care.
In ... Read More
These Guidelines, developed through consensus of five major United States palliative care organizations, describe core precepts and structures of clinical palliative care programs.
The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers. Publishes dementia caregiver tip sheets among other things.
Visit National Family Caregivers Association (NFCA) ... Read More