Reluctant Realism by Margaret R. McLean and Margaret A. Graham published in Issues in Ethics, Winter, 2003 Volume 14, Number 1, Markkula Center for Applied Ethics, Santa Clara University pp. 7-9. To assist in the goal of improving the Latino health care experience in the San Jose community, 66 adults agreed to participate in a series of three focus group sessions that explored their attitudes and concerns regarding end-of-life care. This article presents their views of death and dying, their ... Read More
Respecting Choices is a model training program for facilitators who become resident experts in Advance Care Planning at health facilities and has a strong focus on organizational policy. The goal of the program is to build respect for choices into each organization's policies. A variety of posters, workbooks and planning guides are available in English and Spanish for work with consumers. The program was developed by the Gunderson Lutheran Medical Foundation (LaCrosse,Wis) in the early 1990s. It ... Read More
For the Peer Pilot Training, the Community Network and Peer Pilot Advisory Group created role plays to help peers learn how to enter into difficult conversations about planning for serious illness and the ending of life. These are helpful for peer support workers, clinicians and other caregivers working with people with serious mental health challenges. Click here to view/download Role Plays ... Read More
This workbook is designed for lay discussion leadeers. The guide proves the format and excercises for 3 sessions that give people ideas for thinking and talking about their wishes. It is published by Sacramento Healthcare Decisions, a longstanding leader in end of life care issues. This is now out of print and so may be downloaded and printed at no charge. It is available in English, Spanish and Tagalog. When visiting the publications section on this site click on End-of-Life Educational Materials ... Read More
The Conversation Project (TCP) began in 2010, when Ellen Goodman and a group of colleagues and concerned media, clergy, and medical professionals gathered to share stories of “good deaths” and “bad deaths” within their own circle of loved ones. TCP is dedicated to helping people talk about their wishes for end-of-life care. This effort - among many others - is helping to transform our culture so we shift from not talking about dying to talking about it. Too many people are dying in ... Read More
The Four Things are everyday guides for doing the right thing, for reconciling the rifts that divide people, and for cutting through old history—because you just never know.