When a person is first diagnosed with a serious illness, feelings of shock and stress may make it difficult to think of everything to ask the doctor. Often, it helps to make a list of questions. To help remember what the physician says, you may want to take notes or bring a family member or friend with you to your appointment.
Reluctant Realism by Margaret R. McLean and Margaret A. Graham published in Issues in Ethics, Winter, 2003 Volume 14, Number 1, Markkula Center for Applied Ethics, Santa Clara University pp. 7-9. To assist in the goal of improving the Latino health care experience in the San Jose community, 66 adults agreed to participate in a series of three focus group sessions that explored their attitudes and concerns regarding end-of-life care. This article presents their views of death and dying, their ... Read More
Respecting Choices is a model training program for facilitators who become resident experts in Advance Care Planning at health facilities and has a strong focus on organizational policy. The goal of the program is to build respect for choices into each organization's policies. A variety of posters, workbooks and planning guides are available in English and Spanish for work with consumers. The program was developed by the Gunderson Lutheran Medical Foundation (LaCrosse,Wis) in the early 1990s. It ... Read More
Formed in 1994 as Supportive Care of the Dying by six visionary Catholic health care organizations, Supportive Care Coalition: Pursuing Excellence in Palliative Care, has grown to 23 member organizations with health care facilities nationwide. In 2006, the name was changed to better reflect Coalition palliative care activities that address the continuum of living with life-limiting illness from time of diagnosis to end of life. The coalition is dedicated to promoting cultural change that embraces ... Read More
TAKING CARE: ETHICAL CAREGIVING IN OUR AGING SOCIETY published by The President’s Council on Bioethics Washington, D.C., September 2005 Preface The President’s Council on Bioethics was created by President George W. Bush on November 28, 2001 to advise the President on bioethical issues related to advances in biomedical science and technology. Taking Care addresses the ethical challenges of caregiving in our rapidly aging society, with special attention to the care of people with dementia. ... Read More
This advance care planning workbook was designed by and for people with developmental disabilities to enable them to do their own advance care planning. A DVD video is also available and may be previewed online. This project was created by the California Coalition for Compassionate Care, the Board Resource Center and Mark Starford who has extensive experience and expertise in adapting complex information for persons with developmental disabilities. This is also a great resource to use when working ... Read More
Susan Keller, Executive Director of the Community Network, wrote this piece at the request of the Press Democrat for the Close to Home feature in the Sunday edition. The aim was to help inform the community given all the rhetoric at the national level about "death panels" with regards to national health care reform. This essay was published online Sept 19, 2009 and in the Sunday print edition Sept 20, 2009. Includes photo of Susan Keller. Visit Time to address the need to improve end of life care ... Read More