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New and Noteworthy

APF Made Formal Presentations During U.S. Food and Drug Administration Meeting

Representatives from APF made formal presentations during the U.S. Food and Drug Administration’s (FDA) Joint Meeting of the Anesthetic and Life Support Drugs Advisory Committee and the Drug Safety and Risk Management Advisory Committee on November 13th and 14th to express the need for well thought out Risk Evaluation and Mitigation Strategies that will not only address public safety, but will allow access to appropriate pain medications to the millions of Americans living with chronic pain. APF holds no opposition to programs and processes that increase safety and surveillance of outcomes as long as these systems do no become so complex that they are set up for failure and frustration for all stakeholders. The unintended consequences will affect people living with pain. That outcome is unacceptable. This public hearing took place as new drug applications and safety profiles of two investigational pain medications, Embeda™ and Remoxy™ were being discussed. View APF’s position statements.

Online Chat with Derek McGinnis, Amputee Advocate

Please join us on Friday, November 21st at 8:00 pm ET in APF’s PainAid Chat Room for this Live Chat with Derek McGinnis, the American Pain Foundation’s Amputee Advocate. We will be discussing the importance of exercise as part of your pain care plan. Derek is an Iraq War Veteran who served in the Navy as a Hospital Corpsman for 11 years. After being involved in an IED explosion in Fallujah, Iraq and losing his leg above the knee, Derek focused on physical exercise and triathlon training to help him cope with the mental and physical stress associated with pain during his recovery. Please join us and be inspired by Derek’s story to involve exercise in your pain care plan. There is limited space for this chat, so please go to Military/Veteran Section of PainAid ASAP for reservation instructions. If you do not already have a login name and password for PainAid, please click here first to register for access to PainAid. If you have previously registered with PainAid and have forgotten your password, click here. If you have difficulty accessing PainAid or have any questions, please email Chats@painfoundation.org for assistance.

APF Contributes Chapter on Pain for Online Book

APF is pleased to have contributed a chapter on pain in the new online American Veterans and Service Members Survival Guide. To read the section about pain, click here and go to page 127.

 

National Family Caregivers Month November 2008

November 2008 celebrates National Family Caregivers Month, a time to thank, support, educate and empower family caregivers, those individuals providing care to loved ones living with chronic illness, disability or the frailties of old age. For more information, please visit www.thefamilycaregiver.org.

APF Recognizes Outstanding Leadership and Advocacy Efforts Made in Advancing Rights of People with Pain

APF commemorated the outstanding efforts made to improve pain management and treatment for the millions of Americans who are living in chronic pain by hosting “Images & Inspiration,” an Annual Celebration and Awards Dinner held in October at the American Visionary Arts Museum in Baltimore. A slideshow highlighting selected art submissions from the Pain and Creativity Exhibit was shown at the celebration as well as a video featuring artists, artwork and pain care advocates. Read press release >>

UPDATE: National Pain Care Policy Act of 2008 (HR 2994) to be Reviewed in the ‘Lame Duck’ Session!

The amended National Pain Care Policy Act of 2008 (HR 2994) was passed unanimously by the House of Representatives on September 24, 2008. This bill has since been sent to the Senate Committee on Health, Education, Labor, and Pensions. At this time the bill is pending the full approval by the committee. The Senate is scheduled for a ‘lame duck’ session in November. This session will provide an additional opportunity to have the bill passed by the committee and submitted for a general vote. Read more >>

APF Featured at National Press Foundation Pain Event

APF’s Chief Executive Officer, Will Rowe, recently addressed an audience of reporters at the National Press Foundation’s meeting, “The New Understanding of Pain,” in Washington, D.C. Will was part of an esteemed panel that provided reporters with an overview of pain issues, pain in specific populations, treatment options, as well as the impact of pain policy on clinical practice. Will spoke about pain from the consumer perspective. Reporters were provided with a new APF publication, “A Reporter's Guide: Covering Pain and its Management.”

Pain and Creativity Artists Highlighted

Out of hundreds of submissions to APF and HealthCentral’s Pain and Creativity Exhibit, these works of art were chosen as exemplary pieces, reflecting the impact of pain on self and others, the diversity of the experience, and the dark and hopeful sides of persistent pain. View the images and words of the Pain and Creativity Artists of 2008. Congratulations and thanks to all who shared their voices and experience. The P & C community continues – please join in and submit your creative work!

Let's Talk Pain Coalition

APF is pleased to collaborate with two other leading pain organizations, the American Academy of Pain Management and the American Society for Pain Management Nursing, in the Let's Talk Pain Coalition, a first of its kind to unite the perspectives of patients, caregivers, and healthcare professionals. The core of this work is to encourage people to talk more about pain, listen actively and act in ways that improve care for the millions of people who live with pain. A new interactive website provides visitors with comprehensive information and tools to enhance the dialogue between those affected by pain and healthcare professionals. Read more >>

APF Enters World of Social Media!

APF is expanding into the online communications world. There will be more soon with the unveiling of our improved website before the year ends, but for now check out our videos on YouTube, iTunes, mDialogue, and Facebook!

APF is also collaborating with Life Love & Health to provide a series of brief messages about pain.  Life Love & Health has become America's most listened to daily health and lifestyle program, reaching millions of listeners via XM, CNN, Fox, ESPN, Sirius, Voice of America, www.HealthRadio.net Internet radio, Public Radio affiliates and Wal-Mart Radio. Listen to our shows now!

 

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