Death & Dying

How Hospitals Shape End of Life Care
Summary of Sharon. Kaufman, PhD Presentation to
California Coalition for Compassionate Care
Steering Committee Meeting June 3, 2005
Excerpted from Minutes of Meeting

Sharon Kaufman, Ph.D. Professor of Medical Anthropology at UC San Francisco recently published a book entitled, And a Time to Die: How American Hospitals Shape the End of Life. (2005, NY: Scribner). Dr. Kaufman said in her role as a medical anthropologist she “makes the strange, familiar; and makes the familiar, strange.” She described her recent research about the culture of hospitals and how they influence the “problem of death,” which she defined as people dying with too much technology and not enough humanity.

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.

Caring Connections
-Provides free resources, information and motivation for actively learning about end-of-life resources.
-Promotes awareness of and engagement in efforts to increase access to quality end-of-life care.
-Helps people connect with the resources they need, when they need them.
-Brings together community, state and national partners working to improve end-of-life care.

In thousands of ways, social workers help people help themselves. People of every age. From every background. In every corner of the country - wherever we’re needed - starting here and now. Welcome to your source for professional advice, inspiring stories - even a social worker directory. Social workers. Help starts here. This website is provided by the National Association of Social Workers and includes sections on Seniors and Aging, Issues and Answers, Mind and Spirit. The Senior section includes in-depth look issues of import, real life stories shared, resources of value, current trends, helpful tip, options and other information helpful for finding one’s way through the senior years. The Health and Well Being section includes information related to death and dying, living with illness, pain management, etc. The Mind and Spirit section includes orientation to various mental illnesses, grief & loss and other helpful information.

The Final Crossing: Learning to Die in Order to Live is a new book by Dr. Scott Eberle, Medical Director, Hospice of Petaluma. “This book is itself a rite of passage. Extraordinary insights shared by two remarkable people, one dying, the other the inner life and decisions of the physician and friend attending this fine fellow preparing to head into death. This is the best work of its sort I have come across. There are so many levels, so many books in this book that it might well become a teaching text in many classrooms.” Stephen Levine, author of Who Dies?, Healing into Life and Death, and A Year to Live

Hospice By The Bay, formerly known as Hospice of Marin, is an independent, Medicare and Medi-Cal certified not-for-profit healthcare provider diligently attending to essential physical, spiritual and psychological needs of adults and children who are coping with various stages of progressive and incurable illness in Marin and Sonoma counties.

For nearly three decades, Hospice By The Bay’s goal has been to help terminally ill patients and their loved ones make the most of every remaining moment of life, and to provide education and advocacy for the communities we serve. To that end, we have established the Hospice of Marin Foundation to ensure the availability of hospice and palliative care programs and services for all those in need.

Rooted in community, Hospice of Petaluma has been providing quality, compassionate hospice care and grief services to individuals and families facing life-threatening illness or the death of a loved one since 1977. Hospice of Petaluma and our sister program, Memorial Hospice, are a service of the St. Joseph Health System, a Ministry of the Sisters of St. Joseph of Orange. Patients and families receive interdisciplinary patient care with individualized attention to nursing, psychosocial, spiritual and practical needs that may arise at the end of life. Hospice services are provided by professional staff and specially trained caregiver and grief support volunteers. Volunteer trainings are held in the spring and fall with both daytime and evening classes.

Living Old is one hour Frontline program filmed November 21, 2006 presenting a powerful and intimate journey into the uncharted territory of Americans living longer than ever — and what it means for them, their loved ones and our society. On this site you can view the whole program or individual chapters including:
The Stories-Living lives that neither the elderly nor their families ever prepared for.
Interviews-Doctors, one family’s story, and a conversation with a remarkable 94 year-old.
The Big Issues-What Needs to Change; Nursing Homes; Parents and Children; When Enough is Enough.