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AGS Measuring Quality of Care at the End of Life: A Statement of Principles

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The quality of care provided to persons near the end of life would be captured reasonably well by measuring the nine domains listed in this statement. The tools to do so need development, and funders and researchers should attend to this work. As adequate measurement tools are developed, they should be incorporated into the continuous quality improvement for care systems. With all possible haste, benchmarks of quality in good systems need to be made available. Eventually, information about the performance of insurance plans and care delivery systems should be available to the public for use in selecting insurers and providers; and payors and certifiers should set minimal performance standards for contracting and certification.
» 1212 reads | visit AGS Measuring Quality of Care at the End of Life: A Statement of Principles

American Pain Foundation

More like this: Advocacy | Pain Management
Founded in 1997, the American Pain Foundation is an independent nonprofit 501(c)3 organization serving people with pain through information, advocacy, and support. Their mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management.
» 1216 reads | visit American Pain Foundation

American Public Health Association

More like this: Advocacy | Bills, Laws, Regulations | Educational Opportunities and Events | Multi-Cultural Issues

Founded in 1872, the American Public Health Association (APHA) is the oldest, largest and most diverse organization of public health professionals in the world. The association works to protect all Americans and their communities from preventable, serious health threats. APHA represents a broad array of health officials, educators, environmentalists, policy-makers and health providers at all levels working both within and outside governmental organizations and educational institutions. Information about disparities in health literacy including a health disparities data base may be found at this site along with advocacy tips and resources, educational opportunities and publications related to public health.

» read more | 1274 reads | visit American Public Health Association

Americans for Better Care of the Dying

More like this: Advocacy | Caregiving | Compendiums/Guides | Disease Management | Educational Opportunities and Events | Models & Research | National & International | Palliative Care and Hospice

Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding.

Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. ABCD works with the public, clinicians, policymakers, and other end-of-life organizations to make change happen.

ABCD President Joanne Lynn, MD is one of the foremost national leaders in this movement and the author of Handbook for Mortals: Guidance for People Facing Serious Illness; and Improving Care for the End of Life.

» read more | 2377 reads | visit Americans for Better Care of the Dying

Center to Advance Palliative Care (CAPC)

More like this: Advocacy | Educational Opportunities and Events | Models & Research | National & International | Palliative Care and Hospice

The Center to Advance Palliative Care (CAPC) is a national initiative supported by The Robert Wood Johnson Foundation, with direction and technical assistance provided by the Mount Sinai School of Medicine (NY). CAPC provides health care professionals with the tools and training necessary to start and sustain successful palliative care programs.

CAPC publishes The Case for Hospital-Based Palliative Care-Why leading hospitals are starting palliative care programs to provide high-quality, effective management of advanced illness. Other publications include The Guide to Building A Hospital-Based Palliative Care Program, a how-to handbook with step-by-step guidance.

» read more | 2460 reads | visit Center to Advance Palliative Care (CAPC)

Children's Hospice & Palliative Care Coalition

More like this: Advocacy | Calif & Western Region | Caregiving | Compendiums/Guides | Death & Dying | Models & Research | Palliative Care and Hospice | Planning | Talking Things Over
Children's Hospice and Palliative Care Coalition of California is a group of organizations, institutions and individuals from throughout the State of California working together to promote compassionate medical care which includes spiritual, emotional and financial support for children with life-threatening illnesses. ...because when a child has a serious illness, medicine is not enough...
» 1324 reads | visit Children's Hospice & Palliative Care Coalition

Children's Hospice and Palliative Care Coalition

More like this: Advocacy | Calif & Western Region | Caregiving | Grief and Loss | Models & Research | Palliative Care and Hospice | Talking Things Over
CHPCC represents children, parents, families, and health care providers in our collaboration with community leaders, government officials, legislators, and social advocates, to improve healthcare systems. Our success is particularly vital to the more than 17,000 low-income families in California whose children have been diagnosed with life-threatening conditions such as cancer, cystic fibrosis, muscular dystrophy, and cerebral palsy. The programs we create and policies we advocate for not only benefit the children, but also the families who love and care for them.

History has shown us that the current medical system often overlooks the care and emotional support of children with chronic, complex medical conditions and their families. It’s time for that to change.
» read more | 33 reads | visit Children's Hospice and Palliative Care Coalition

Coalition for Compassionate Care of California

More like this: Advocacy | Calif & Western Region | Educational Opportunities and Events | Models & Research
The Coalition for Compassionate Care of California (CCCC) is a statewide partnership of more than 95 regional and statewide organizations promoting high quality compassionate end of life care for all Californians. The California POLST Program is led by the CCCC with statewide POLST efforts guided by a 75 -member POLST Task Force. Local efforts to promote POLST and provide education were led statewide by 18 funded POLST coalitions including the Sonoma County Coalition for Compassionate Care, a program of the Community Network. Visit the CCCC website for excellent resources and training opportu
» read more | 5570 reads | visit Coalition for Compassionate Care of California

Community Network for Appropriate Technologies

More like this: Advocacy | Consulting | Greater Sonoma County | Models & Research | Multi-Cultural

Overview

The Community Network for Appropriate Technologies was incorporated in 1978 as a federally recognized nonprofit, tax-exempt educational and charitable organization. Susan Keller, Executive Director and Principal Planner, founded the Community Network based on principles which she developed and employed in the Midwest while facilitating creation of a nationally prominent library council.

Community Network Services

The general focus of our work is the development of cooperative working relationships within individual organizations, and across organizational and political boundaries. Our overall goal is the development of programs, services, and organizations that are socially, economically, and ecologically sound.

» read more | 9978 reads

Compassion and Choices

More like this: Advocacy | Calif & Western Region | Death & Dying | Educational Opportunities and Events | Greater Sonoma County | National & International | Palliative Care and Hospice
Compassion & Choices is a non-profit organization dedicated to improving care and expanding choice at the end of life. They provide free client services to the terminally ill and do legal advocacy through the courts and legislatures. They inform and educate the public through the media and other outreach programs.
» 2506 reads | visit Compassion and Choices