Caregiving

Maryann Schacht, MSW, BCD, is an author, speaker, and workshop leader with more than 30 years experience working with families in crisis. Her book titled A Caregiver’s Challenge: Living, Loving, Letting Go offers a road map and survival guide to everyone who is suddenly thrust into a caregiver role. She combines her personal experience caring for her terminally ill husband with her professional expertise in this invaluable resource. A Caregiver’s Challenge offers support, resources, and useful exercises for caregivers and their patients.

Maryann is frequently interviewed on national radio about caregivers and comfort care issues.

Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding.

Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. ABCD works with the public, clinicians, policymakers, and other end-of-life organizations to make change happen.

ABCD President Joanne Lynn, MD is one of the foremost national leaders in this movement and the author of Handbook for Mortals: Guidance for People Facing Serious Illness; and Improving Care for the End of Life. Extensive excerpts from both of these books are accessible via the ABCD website

This important study and related reports released by the California Healthcare Foundation in March 16, 2007 reports that: In California, the most populous and diverse state in the country, significant racial and ethnic differences exist at the end of life. These reports – the first in a new series of CHCF-supported projects focusing on end-of-life issues - found significant variations in the expectations, experiences, and decisions of patients and their families in the months preceding death.

“As California’s diverse population grows older, ensuring quality care at the end of life for everyone takes on even greater significance,” Mark D. Smith, M.D., M.B.A., president and CEO of CHCF, said Thursday at the Association of Health Care Journalists conference in Los Angeles. “By supporting research and projects to improve the quality of end-of-life care, CHCF sees an opportunity to help make California a national example of best medical practices and culturally appropriate care.”

Care of the Patient with Severe Chronic Illness-An Online Report on the Medicare Program is a key critical report completed in 2006 by the Dartmouth Atlas Project. It reports that: “Almost one-third of Medicare spending for chronically ill is unnecessary… A fundamental problem, and one that contributes to both overspending and worse outcomes, is that most acute care hospitals have become first-line providers of services to chronically ill elderly people, whose care would be better managed, safer and less expensive outside the hospital setting. . . . Staggering variations in how hospitals care for chronically ill elderly patients indicate serious problems with quality of care and point toward unnecessary spending by Medicare. Lower utilization of acute care hospitals and physician visits could actually lead to better results for patients and prolong the solvency of the Medicare program.” The study calls for overhauling how the nation manages chronic illness, and proposes that hospitals take leadership in redesigning how they care for the chronically ill.

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.

Caring Connections
-Provides free resources, information and motivation for actively learning about end-of-life resources.
-Promotes awareness of and engagement in efforts to increase access to quality end-of-life care.
-Helps people connect with the resources they need, when they need them.
-Brings together community, state and national partners working to improve end-of-life care.

In thousands of ways, social workers help people help themselves. People of every age. From every background. In every corner of the country - wherever we’re needed - starting here and now. Welcome to your source for professional advice, inspiring stories - even a social worker directory. Social workers. Help starts here. This website is provided by the National Association of Social Workers and includes sections on Seniors and Aging, Issues and Answers, Mind and Spirit. The Senior section includes in-depth look issues of import, real life stories shared, resources of value, current trends, helpful tip, options and other information helpful for finding one’s way through the senior years. The Health and Well Being section includes information related to death and dying, living with illness, pain management, etc. The Mind and Spirit section includes orientation to various mental illnesses, grief & loss and other helpful information.

[Home Care For Hospice Patient—Informative Pamphlet For Home Care Givers]

Offers dozens of practical tips for caregivers in the home (48 pages).

Obtain from: The Purdue Frederick Company — 2002 B3316 00PM72. No Fee.

EnsignWatch.com scrutinizes patient care at the Ensign Group, Inc.

Sponsored by Nursing Home Watch, Ensign Watch is totally independent of Ensign Group.

Nursing Home Watch is a coalition of senior advocates, nursing home workers, nursing home residents and family members, the Service Employees International Union, and community supporters who have united to improve the safety and quality of care in California’s nursing homes.

The Final Crossing: Learning to Die in Order to Live is a new book by Dr. Scott Eberle, Medical Director, Hospice of Petaluma. “This book is itself a rite of passage. Extraordinary insights shared by two remarkable people, one dying, the other the inner life and decisions of the physician and friend attending this fine fellow preparing to head into death. This is the best work of its sort I have come across. There are so many levels, so many books in this book that it might well become a teaching text in many classrooms.” Stephen Levine, author of Who Dies?, Healing into Life and Death, and A Year to Live