Compendiums/Guides

A Caregiver's Challenge

More like this: Caregiving | Compendiums/Guides | EOLCA Participants | Greater Sonoma County | Organizations & Services | Publications | Talking Things Over

Maryann Schacht, MSW, BCD, is an author, speaker, and workshop leader with more than 30 years experience working with families in crisis. Her book titled A Caregiver’s Challenge: Living, Loving, Letting Go offers a road map and survival guide to everyone who is suddenly thrust into a caregiver role. She combines her personal experience caring for her terminally ill husband with her professional expertise in this invaluable resource. A Caregiver’s Challenge offers support, resources, and useful exercises for caregivers and their patients.

Maryann is frequently interviewed on national radio about caregivers and comfort care issues.

A Framework For Thinking Ethically

More like this: Bioethics | Compendiums/Guides | Educational Opportunities and Events | Legal & Insurance | Models & Research | Talking Things Over

A Framework For Thinking Ethically
Markkula Center for Applied Ethics, Santa Clara University
This document is designed as an introduction to thinking ethically. We all have an image of our “better selves” - or of how we are when we act ethically or are “at our best.” We probably also have an image of what an ethical community, an ethical business, or an ethical government is - and maybe even an ethical society as a whole. Ethics really has to do with all three levels - acting ethically as individuals, creating ethical organizations and governments, and making our society as a whole ethical in the way it treats all.

Americans for Better Care of the Dying

More like this: Advocacy | Caregiving | Compendiums/Guides | Disease Management | Educational Opportunities and Events | Models & Research | National & International | Palliative Care and Hospice

Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding.

Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. ABCD works with the public, clinicians, policymakers, and other end-of-life organizations to make change happen.

ABCD President Joanne Lynn, MD is one of the foremost national leaders in this movement and the author of Handbook for Mortals: Guidance for People Facing Serious Illness; and Improving Care for the End of Life. Extensive excerpts from both of these books are accessible via the ABCD website

And Thou Shalt Honor

More like this: Compendiums/Guides
Resources associated with the PBS programs.

Bill Moyer's On Our Own Terms Series

More like this: Compendiums/Guides | Dying at Home
There is a great divide separating the kind of care Americans say they want at the end of life and what our culture currently provides. Surveys show that we want to die at home, free of pain, surrounded by the people we love. But the vast majority of us die in the hospital, alone, and experiencing unnecessary discomfort. Bill Moyers goes from the bedsides of the dying to the front lines of a movement to improve end-of-life care in ON OUR OWN TERMS: Moyers on Dying. Two years in production, this four-part, six-hour series crosses the country from hospitals to hospices to homes to capture some of the most intimate stories ever filmed and the most candid conversations ever shared with a television audience.

Caring Resources Guide

More like this: Compendiums/Guides
Caring Resources Guide (by the Compassionate Care Alliance of Monterey County) provides links to what may be among the best articles on the web or websites that discuss the many issues about serious illness, caregiving, end-of-life, and grief recovery.

Center for Practical Bioethics Resource Links

More like this: Bioethics | Compendiums/Guides | Models & Research | Palliative Care and Hospice | Talking Things Over

The Center for Practical Bioethics offers a variety of publications, video and audiotapes designed to enhance ethics education and promote discussion of ethics issues. Links are provided for free material and for items to purchase via their online store.

City of Hope/ Pain and Palliative Care Resource Center

More like this: Compendiums/Guides | Health Libraries Online | Models & Research | Pain Management
A well-indexed comprehensive site on all related topics. Palliative Care section includes recommended books with order info, Guidelines/Clinical Practices, Educational Material/Curriculum, and Excellent Organization Links.

Coda Alliance Online Education Exchange

More like this: Compendiums/Guides | Educational Opportunities and Events | Models & Research
The Coda Alliance provides an excellent listing of articles from members of the Inter-Institutional Collaborating Network On End-of-life Care. You can search the entire library of articles by keywords.

Completing A Life

More like this: Compendiums/Guides
An interactive CD-ROM and Web Site inviting patients and families to learn about the practical, emotional, spiritual and medical issues faced by those dealing with advanced illness.