Models & Research

National Consensus Project for Quality Palliative Care (NCP) Guidelines

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These Guidelines, developed through consensus of five major United States palliative care organizations, describe core precepts and structures of clinical palliative care programs.

Physician Orders for Life-Sustaining Treatment (POLST)

More like this: Advance Directives | Legislative, Regulatory, Finance | Models & Research | Talking Things Over

Physician Orders for Life-Sustaining Treatment (POLST) is a document to help ensure that a patient’s wishes are known and honored toward the end of life. It uses a standardized medical order used to indicate which types of life-sustaining treatment a seriously ill patient wants or doesn’t want if his or her condition worsens.

POLST assists health care providers and patients or their surrogate to develop a transferable care plan of desired interventions when dealing with serious, life-limiting illness. Through focused conversations about preferences for nature and intensity of care, people are able to establish a customized standard of care across care settings. The bright pink card stock form travels with the patient and is legally binding in California when properly dated and signed.

Promises to Keep: Changing the Way we Provider Care at the End of Life

More like this: Advocacy | Compendiums/Guides | Disease Management | Educational Opportunities and Events | Models & Research | Palliative Care and Hospice | Planning

Promises to Keep: Changing the Way We Provide Care at the End of Life published by the National Coalition on Health Care and The Institute for Healthcare Improvement. in October, 2000. This report presents the stories of institutions and organizations that made a commitment to change and innovation to improve care at the end of life. The profiles presented in this report reflect some of the most promising pioneering efforts underway in the field of palliative care. RAND’s Center to Improve Care of the Dying (CICD) staff worked closely with the National Advisory Panel of Americans for Better Care of the Dying to develop selection criteria for groups profiled.

Promoting Excellence in End-of-Life Care

More like this: Compendiums/Guides | Educational Opportunities and Events | Models & Research
Dedicated to long-term changes to improve health care for dying people and their families. Through the work of innovative demonstration projects and peer workgroups they strive to address particular challenges to existing models of hospice and palliative care.

Reluctant Realism - Latino Perspective on End of Life Issues

More like this: Advocacy | Bioethics | Disease Management | Latino Resources | Models & Research | Multi-Cultural Issues | Palliative Care and Hospice | Planning | Talking Things Over

Reluctant Realism
by Margaret R. McLean and Margaret A. Graham published in Issues in Ethics, Winter, 2003 Volume 14, Number 1, Markkula Center for Applied Ethics, Santa Clara University pp. 7-9.

To assist in the goal of improving the Latino health care experience in the San Jose community, 66 adults agreed to participate in a series of three focus group sessions that explored their attitudes and concerns regarding end-of-life care. This article presents their views of death and dying, their interactions with the health care system, and their concerns about discussing these issues with their families.

Respecting Choices

More like this: Compendiums/Guides | Educational Opportunities and Events | Models & Research | Planning | Talking Things Over
*Respecting Choices* is a model training program for facilitators who become resident experts in Advance Care Planning at health facilities and has a strong focus on organizational policy. The goal of the program is to build respect for choices into each organization's policies. A variety of posters, workbooks and planning guides are available in English and Spanish for work with consumers. The program was developed by the Gunderson Lutheran Medical Foundation (LaCrosse,Wis) in the early 1990s. It has consistently demonstrated success with follow back studies showing 85% of patients have completed advance directives and that families felt that their loved ones wishes were honored through the ending of life as a result.

Snapshot: Death and Dying in California

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Judith Citko and Lake Research Partners, November 2006

Despite its inevitability, death is a difficult topic for many patients, families, and physicians to discuss openly. However, with more Americans getting older and the increase in prime-time media coverage of highly charged end-of-life issues, there is a growing awareness and discussion of the complex considerations involved.

This report, featuring survey findings and the latest data available, examines changing attitudes about death and dying and potential trends through the lens of demographics, the cost and nature of end-of-life care, and cultural norms.

Sonoma County Health Care System Crisis

More like this: Advocacy | Agencies and Elected Officials | Greater Sonoma County | Models & Research

Sonoma County is in the middle of re-engineering the county’s health care system for service to MediCal and uninsured populations with the Department of Health Services in the lead. A DHS Planning and Implementation Committee is now working with Partnership Health Plan to design and fund the care delivery system that will become operational in Sonoma County later in 2008.

Sonoma County is also in the process of assessing the impacts and potential for Sutter Health Center intent to transition out of its Health Access Agreement to provide care for the county’s indigent and uninsured. Important meetings and documents related to the Proposed Sutter/Memorial transaction may be accessed at Healthcare Impact Assessment

Taking Care: Ethical Caregiving in our Aging Society

More like this: Bioethics | Caregiving | Death & Dying | Models & Research | Palliative Care and Hospice | Planning

TAKING CARE: ETHICAL CAREGIVINGIn OUR AGING SOCIETY published by The President’s Council on Bioethics
Washington, D.C., September 2005
Preface
The President’s Council on Bioethics was created by President George W. Bush on November 28, 2001 to advise the President on bioethical issues related to advances in biomedical science and technology. Taking Care addresses the ethical challenges of caregiving in our rapidly aging society, with special attention to the care of people with dementia. The report purpose is to provide a humanly rich account of the caregiving dilemmas social, familial, and personal, and to offer some important ethical guidelines for the care of persons who can no longer care for themselves.