Caring Community - Compendiums/Guides

A Caregiver's Challenge

Mon, 24 Oct 2005 15:06:04 -0700

Maryann Schacht, MSW, BCD, is an author, speaker, and workshop leader with more than 30 years experience working with families in crisis. Her book titled A Caregiver’s Challenge: Living, Loving, Letting Go offers a road map and survival guide to everyone who is suddenly thrust into a caregiver role. She combines her personal experience caring for her terminally ill husband with her professional expertise in this invaluable resource. A Caregiver’s Challenge offers support, resources, and useful exercises for caregivers and their patients.

Maryann is frequently interviewed on national radio about caregivers and comfort care issues.

A Framework For Thinking Ethically

Thu, 3 Nov 2005 09:26:07 -0800

A Framework For Thinking Ethically
Markkula Center for Applied Ethics, Santa Clara University
This document is designed as an introduction to thinking ethically. We all have an image of our “better selves” - or of how we are when we act ethically or are “at our best.” We probably also have an image of what an ethical community, an ethical business, or an ethical government is - and maybe even an ethical society as a whole. Ethics really has to do with all three levels - acting ethically as individuals, creating ethical organizations and governments, and making our society as a whole ethical in the way it treats all.

Americans for Better Care of the Dying

Mon, 7 Nov 2005 16:02:26 -0800

Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding.

Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. ABCD works with the public, clinicians, policymakers, and other end-of-life organizations to make change happen.

ABCD President Joanne Lynn, MD is one of the foremost national leaders in this movement and the author of Handbook for Mortals: Guidance for People Facing Serious Illness; and Improving Care for the End of Life. Extensive excerpts from both of these books are accessible via the ABCD website

And Thou Shalt Honor

Fri, 1 Oct 2004 21:35:08 -0700

Resources associated with the PBS programs.

Bill Moyer's On Our Own Terms Series

Fri, 10 Sep 2004 10:41:00 -0700

There is a great divide separating the kind of care Americans say they want at the end of life and what our culture currently provides. Surveys show that we want to die at home, free of pain, surrounded by the people we love. But the vast majority of us die in the hospital, alone, and experiencing unnecessary discomfort. Bill Moyers goes from the bedsides of the dying to the front lines of a movement to improve end-of-life care in ON OUR OWN TERMS: Moyers on Dying. Two years in production, this four-part, six-hour series crosses the country from hospitals to hospices to homes to capture some of the most intimate stories ever filmed and the most candid conversations ever shared with a television audience.

Caring Resources Guide

Sat, 4 Sep 2004 16:52:22 -0700

Caring Resources Guide (by the Compassionate Care Alliance of Monterey County) provides links to what may be among the best articles on the web or websites that discuss the many issues about serious illness, caregiving, end-of-life, and grief recovery.

Center for Practical Bioethics Resource Links

Mon, 15 Jan 2007 08:14:19 -0800

The Center for Practical Bioethics offers a variety of publications, video and audiotapes designed to enhance ethics education and promote discussion of ethics issues. Links are provided for free material and for items to purchase via their online store.

City of Hope/ Pain and Palliative Care Resource Center

Thu, 9 Sep 2004 21:32:31 -0700

A well-indexed comprehensive site on all related topics. Palliative Care section includes recommended books with order info, Guidelines/Clinical Practices, Educational Material/Curriculum, and Excellent Organization Links.

Coda Alliance Online Education Exchange

Sat, 11 Sep 2004 07:48:56 -0700

The Coda Alliance provides an excellent listing of articles from members of the Inter-Institutional Collaborating Network On End-of-life Care. You can search the entire library of articles by keywords.

Completing A Life

Wed, 1 Sep 2004 12:08:30 -0700

An interactive CD-ROM and Web Site inviting patients and families to learn about the practical, emotional, spiritual and medical issues faced by those dealing with advanced illness.

Educating Physicians in End of Life Care

Sat, 11 Sep 2004 07:48:36 -0700

The EPEC training is easily accessible on line or to bring into the community as a credentialed workshop program. The EPEC mission is to educate all healthcare professionals on the essential clinical competencies in palliative care. The EOLCA co-sponsored an EPEC training for the Sonoma County region in 2001 and 2003 with more than 100 physicians and many other health care professionals taking the two day in-depth training. All EPEC materials including CD Rom, Trainors Manual and Plenary video tapes are available in the Journey Project Resource Center for review.

Fast Facts (from End of Life/Palliative Education Resource Center)

Wed, 1 Sep 2004 12:40:40 -0700

Fast Facts services of the End of Life/Palliative Education Resource Center (EPERC) provides peer reviewed, one-page outlines of key information on important end-of-life clinical topics for end-of-life educators and clinicians. Categories include: clinical interventions, communications, disease categories, ethics, non-pain symptoms/disorders/syndromes, pain, terminal care/ patient’s – family experience.

Requires that you register and login, but it is free.

Growth House

Fri, 3 Sep 2004 15:29:30 -0700

Growth House, Inc., provides this portal to resources for life-threatening illness and end of life care. Their primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. Their search engine gives you access to the Internet's most comprehensive collection of reviewed resources for end-of-life care.

Their hypertext topic pages explain major issues in hospice and home care, palliative care, pain management, grief, death with dignity, and quality improvement. They offer disease-specific guides for heart failure, end-stage renal disease, and cancer, plus overviews of key HIV/AIDS resources.

healthfinder espanol -- su guía a la información confiable de la salud

Fri, 1 Oct 2004 20:44:41 -0700

healthfinder® is an award-winning Federal Web site for consumers, developed by the U.S. Department of Health and Human Services together with other Federal agencies. Since 1997, healthfinder® has been recognized as a key resource for finding the best government and nonprofit health and human services information on the Internet. healthfinder® links to carefully selected information and Web sites from over 1,500 health-related organizations.

Lending Library (Hospice of the Florida Suncoast)

Sat, 4 Sep 2004 17:33:40 -0700

The Hospice of the Florida Suncoast's lending library has published online the catalog of their a vast assortment of books, videos, research projects, periodical articles and magazines.